My vitals were fine and I was safe. Thanks. These articles were formed in a large part due to Daily Strength. Staying healthy and active can help prevent them. Whether or not pushing myself physically did any good I'll never know. The First Few Days Most people who experience pulmonary embolism are hospitalized for at least a few days, but experts now believe that some people, if their clinical condition is … Immediate care will vary greatly. However, prompt treatment greatly reduces the risk of death. This means most of the time you don't see a specialist and the whole system is fairly slack! My wife and I shared a lot of tears over this. Went back to the GP with the results and was sent immediately to see a Respiratory Consultant. That blockage can damage your lungs and hurt other organs if … I started feeling a lot better when I stopped it. My experience here has been just as you relayed. I now realize I am so lucky to be alive. I have since been put on a blood thinner treatment plan; enoxaparin 150 mg daily. We booked this with a 2 week wait. Was in for a few days then released. The ER checked my vitals. I had always thought that hospital stays would be miserable and that going home would be a relief. Oh, and here is a chart with foods to stay away from or eat sparingly. Lena Welch (author) from USA on April 05, 2015: I am glad thattPA was there! I should add that I'm a New Zealander, with the benefit of free hospital care. Seek immediate help if you are experiencing a medical emergency. Recently I have noticed I can do a lot more like stretch my ribs without any effort or pain, when I cough or take a deep breath it feels easier and clearer than when first diagnosed, exercise is slowly getting a bit easier to do. Mine are all gone. Perhaps they bruise in the same way that our skin does. X-ray and CT scan were immediately done and showed presence of blood clots in both lungs. I'm still waiting for the penny to drop, I suppose. All is well here. I just brought this page to the attention of new members at the DailyStrength forum. I am thankful I do not have to take Zeralto anymore, due to the terrible side effects I suffered. I apparently almost died as I also got pneumonia after the op and then the PE. Since, I have had a cascade of bizarre symptoms. It does create a certain anxiety, the aches, pains, cough. In September 2013 I had a massive cerebral venous clot extending to my jugular and pulmonary emboli to 4 out of 5 of the lobes of my lungs. Mental health is a HUGE problem post PE and often one that is neglected. other than sisunses he has been in good health. The next day is when everything changed, the doctor came into us and said 'we found whats wrong'. My major symptom was shortness of breath and it took a few days to realize it was different from my asthma. The irony is that the pulmonologist can't "see" this condition. I tested positive for heart disease. I wake up several times a night because I have stopped breathing, which make my ribs & lungs sore in the mornings. Stay strong. Clot. The hospital has a scheme whereby a nurse comes to the patient's home every morning to do the INR blood test until the levels are right. The symptoms that helped diagnose the embolism are some of the same things that will be experiences after the diagnosis of the embolism. Again, thank you for this amazing article that has brought so much relief to my weary soul. I wonder if I will have those symptoms forever as a legacy from the embolism. I was discharged a week ago from the hospital. That was my first night. We humans are so strong and yet so fragile at the same time. The breathing problems from that cause coughing, mild shortness of breath, chest pain, and fast heart rate. My mother suggested I put on a knee brace, which I did but removed a few hours later because it felt too tight and was causing pain in my lower leg. I spent 6 days in the hospital getting my warfarin going and get my INR high enough to go home. 2016; doi:10.1016/j.chest.2015.11.026. I stayed 2 weeks in ICU. I would love any feedback on chest sensations if anyone else has experienced them. Taking actions to stop blood clots from forming in the legs also can help to protect an individual against pulmonary embolism or the clot from moving from the leg to the lungs. healthherbalclinic. Everything tells me my body will absorb the P E my boyfriend is under the impression it's already gone. it can be done. Doctors may treat or prevent blood clots by prescribing blood-thinning medications. All tests show no cause after brain, gastro, kidney and liver scans. There are many interactions with Warfarin. I am off of Coumadin. I had the tummy injections and am now home on warfarin taking 4mg and 5mg alternate days. My doctor has said that I will need to be on warfarin for life or until a better drug comes along. What I have found is how taxing this is mentally. I was hospitalized January 2011 with PEs in both lungs, & am working very closely now with my doc to figure out what is wrong with me. THANKS TO YOU. You'll need to take your time recovering from this procedure and will go through a period of healing in the hospital and then at home. I am only a week past my embolism and still pretty scared. I would think that asking for an echo isn't a bad idea. My friend thinks I am an evolving life form! This resulted in part of my lung dying. Again, thank you for just taking the time to read my story. Blood clots can form in the deep veins of the legs if blood flow is restricted and it slows down. Followed up with my primary care dr 3 days later. Vaccine updates, safe care and visitor guidelines, and trusted coronavirus information, Mayo Clinic Graduate School of Biomedical Sciences, Mayo Clinic School of Continuous Professional Development, Mayo Clinic School of Graduate Medical Education, Book: Mayo Clinic Family Health Book, 5th Edition, Newsletter: Mayo Clinic Health Letter — Digital Edition, Extracorporeal membrane oxygenation (ECMO), FREE book offer – Mayo Clinic Health Letter, New Year Special -  40% off – Mayo Clinic Diet Online. All rights reserved. I give thanks to God every day that he spared my life that night. He will be on Rivaoxoban and will wear compression stockings for life. Today I might have a pressure or a spark when I start exercising or during a good workout. Hello! You all know how it is. Many days I would say I have all the energy that I had pre-embolism. With Xarelto, I don't have to have my blood levels checked like you do on Coumadin. I stayed 2 weeks in ICU. Symptoms typically improve within a few days of starting the anticoagulant. What Causes Blood Clots In Lungs After Surgery? Its realy helpful. I then spent five days in cardiac intensive care. I've learned much. I was 2 weeks from my surgery and had just gotten a hard cast 2 days ago. The blood tests showed no genetic component. Okay, that means only 1 driving break each way. They then proceeded the treatment plan for PE. Also his feet swell up and are numb all the time. My doctor was worried about my WBC readings, but they were high when I was first diagnosed with the PE (granted, the levels seem progressively worse---but not greater than or equal to 20,000 lymphocytes). I was told I had 4 clots in my right lung and 2 in my left. Now, I sleep 9-10 hours a day. Advertising revenue supports our not-for-profit mission. I thought it was a lot of fuss about nothing because I was feeling fine, just a little bit breathless if I walked too far. Don’t rush your recovery. Some people bounce right back and return to work quickly. Turned out I had multiple embolisms in both lungs. I am glad you had your doc check it out thought! Elsevier; 2020. I had every side effect on the Zeralto, back pain, body aches, my fingers even hurt, it felt like I had the flu for 6 months, I was too tired to work. In some cases death. Then, Petes leg started to swell massively and changed colour. I look back at my clots and see my gramma's death as the possible start point for my oddyssey so it is a very good time to discuss this. Sudden collapse and death are often attributed to an embolism. I also have osteoporosis and psoriatic arthritis. As the days pass you will begin to feel like you are living with vampires. I was in good health and in good physical condition. It may be a while before I can work so finances worry me immensely as I have just got residency and we have little savings. a) Has anyone had blood in their sputum? I was in great shape. Before the broken hip I was a keen road cyclist thinking nothing of riding 100 miles. After surgery 40 yrs ago had a PE. Here are some things that you might experience once home: While these symptoms are common you should not dismiss them. Pulmonary embolism recovery can be long if you have had substantial damage to your lungs or heart. I was told that a year out from my hospitalization I should feel a lot better. Trying to be objective of your symptoms and trying to figure out if what you’re feeling is what is expected during recovery or if it might be another one that could kill you. Quit smoking 30 yrs ago. Now I'm back to low level mountain biking. Im having a hard time but not because of the LE. The blood clot was confirmed and it was also confirmed that he has no blood clotting disorder, they believe the clots he has were caused by trauma. Need for interventions. I had a hip replacement in Nov 2013 and they found bacteria in my hip so i was given a temporary prosthesis which jumped out of its socket only two weeks after the OP pain which u just cant imagine posible,went back to hospital to recover for a week and was sent home. WHAT? I’ve been to the er several times because of chest pains and they ran lots of blood tests and did x rays, I was told everything was normal. I was in the hospital for 4 days. I had bilateral PE and DVT from an occluded subclavian vein in my right arm (a little less than 3 months ago). It is not uncommon for someone to go 3 months without any problems and then find themselves with pain or shortness of breath again. I'm glad to know others feel similarly, and that I'm not the only one. In June 2010, I felt a pain in the right side of my upper chest that I thought at first was just gas pain. I know it is scary that it was missed. I tried, but did not have the stamina required for my job. "You have multiple blood clots in both lungs." Until this active and healthy 72 yr old with very large family no heart blood problems. Either way, those with minor embolisms may be lucky enough to return to work a week or so after discharge. Was put on a Holter monitor and found that my average pulse was going 105, and peaked at 153. I am a medical practitioner myself and I must say first off that this training does not help you for this post PE recovery. If you have a life-threatening pulmonary embolism, our surgeons may need to perform an open embolectomy using general anesthesia. It is looking like that was a good estimate for my body. I still experience the shortness of breath although everybody seems to think I'm being a hypercondriac and just pat me on the head saying it will be okay. There is no generic for it, so they charge both an arm and a leg. I’ve been hospitalized numerous times with blood clots in my lungs. My blood level at 2,1 is OK and the future tests for the correct level will continue until the time when I will finally assume room temperature, (which I hope fro a few more years.) have been out of work for 3 months but that is also due to the broken hip recovery as well as the pe. How after all this physical therapy, normal oxygen levels, am I so short of breath just walking one flight of stairs, walking like a turtle, can't hold a conversation at the same time?! I hope someday I can let go of these feelings that I need to watch him so closely and just let him live his life. Over time, the tissue heals, but it can take three months to a year or more for a person’s lung function to return to pre-COVID-19 levels.” Because the clots block blood flow to the lungs, pulmonary embolism can be life-threatening. I haven't been the same since the PEs. Now my goal was simply get back home and see my Dr. I only have heterozygous Factor V Leiden. I am newly released and an sure will be back over and over again when in need of reassurance. It does give me some hope that many of you have said the clots have dissolved? My heart rate is under 100bpm. I got a stomach bug. I spoke to few people who used the treatment here in USA and they all gave a positive response, so i immediately purchased the Emphysema herbal formula for my husband and he commenced usage, its totally unexplainable how all the symptoms totally dissapeared, his cough was gone and he no longer experience shortness of breath(dyspnea), contact this herbal clinic via their email healthherbalclinic@ gmail. they did an emergency clotbuster and put me on Eliquis now. So, after having been on coumidin for 2 years , I'm going to stop it next week for 5 days until surgery and will resume it a day after surgery plus lovinox for 10-12 days following surgery. It turned out that I had a very fatal condition known as a pulmonary embolism (PE). Walking will help you prepare for going home. Others will find that they have a lot of healing to do. I don't know how they handle it when there are already heart concerns. It can harm part of the lung due to restricted blood flow, reduce oxygen levels in the blood, and affect other organs too. Be your own advocate until you feel like you have gotten the best care that you can get. Possibly 10. This content does not have an Arabic version. Accessed Nov. 16, 2019. "Sparks" are like small electrical jolts that are sporadic and move around. I've decided to go ahead and (after consulting my primary care doc, hemotologist, gastro doc) to have surgery. Gasping is my term for breathing harder and faster than what ordinarily would be expected. Look for a OBGYN that specializes in high risk pregnancy and find a good hematologist. Just saw my pharma doc to get INR readings. CT two large clots one lung and one in the other. IIRC the cancer marker to watch is Antinuclear Antibodies Direct (ANA Direct) and this can be added to a blood test. Blood thinners can help prevent existing clots from getting bigger and keep new clots from forming. You can also find me at Clot Spot. Thank you so much for your insight! Registered charity in England and Wales (326730), Scotland (SC038415) and the Isle of Man (1177). I feel like I wrote it. I can't tell I had them physically but mentally it will always be there. I hope so as I can't picture mixing them! I was sent via ambulance to the ER after fainting and having seizures twice within 15 minutes. Thank you !!! follow up is in another 2 weeks. Thumbs up, Sharing and now following you! I had an echo but it was just to look for thickening of the muscle due to strain from having a massive PE.